A Self Help Website About ENS Register Contact Us  
 
   
Home | Donate | Links | News | Forum |
What is ENS
Our Mission
Testimonials
Turbinates Tutorial
Nose Tutorial
Respiratory System
Be Proactive
Register
Donate
Forum
Survival Tips
Links
Articles

sign on the patient list

 

iv>
Empty Nose Syndrome Survival Tips

Empty Nose Syndrome Survival Tips

 

 

The following list was found to be the most popular tips suggested by more then 300 forum members (written by TE):

 

ü      Daily nasal irrigations of regular saline are always recommended. Many patients prefer to use Ringer Lactate solution instead, as they find it's easier on the mucosa than regular saline, and there are some empirical studies that back up that claim.

 

ü      Saline, Ringer Lactate, or hyaluronic acid based - nasal mist sprays, or gels, are always helpful when proper irrigation is not possible.

 

ü      Sesame oil can help in cases of extreme dryness and crusts.

 

ü      Sleeping with a cool mist humidifier.

 

ü      Sleeping with a CPAP machine that has a built-in humidifier.

 

ü      Some patients respond well to orally taken vitamin A and D. (be advised that exceeding the upper limits of the daily recommended dosage of these vitamins can be detrimental to your health)

 

ü      Acupuncture and shiatsu meant to improve nasal blood supply and nerve function.

 

ü      Dressing warm, drinking plenty of water and sleeping in a warm environment.

 

ü      Regular physical activity and a healthy life style are most important too.

 

 

 

 

A collection of tips posted on the patients forum:

 

 

Suggestions by forum member "Erikavs" Apr 23, 2008:

 

Here are my tips for ENS management. First, consider my history and symptoms to assess how my tips might apply to you.
I have ENS-IT following two surgeries (outfracture and resection), two somnoplasties, and one cautery. All safe alone, but not safe in conjunction or repetition. My main symptoms before intervention were postnasal drip, snoring, and increasing congestion/swelling. As ENS progressed with each procedure, my postnasal drip became thick and sticky mucus that caused congestion and increasing blockage, and my nasal tissue became dry, raw, and bled often. After all these procedures and my own self-diagnosis of ENS from this site, I could no longer sleep through the night without waking up congested with mucus, and having to rinse out the mucus with saline irrigation. Now I am recovering with implants from Dr. Houser!!!

For mild ENS as I had at the start:
1. Use Breathe Right Strips instead of more surgery to open up your nasal passage around your swollen turbinates.

For mild or ENS-IT, I have always had relief from the following treatments: (Breathe Right Strips made me too dry after I had too much turbinate tissue removed, but now they are working well with my implants as I wait for the swelling to decrease).

1. If you have nasal congestion from swollen turbinates, get into a routine of saline irrigation. Morning and evening has always worked for me at any stage. At my worst I did it as many times a day as needed. I don't get much satisfaction from Rhinaris, Ocean,
Ayr, or fine spray moisturizers myself, because my need is to rinse out the mucus sticking to the back -- that needs a powerful stream, not a fine mist! But moisturizing sprays are helpful, too, and more portable!
Irrigation will decongest the turbinates and wash out any irritants, allergens, or mucus. I use the Neil Med Squeeze Bottle and make my own mixture of salt and baking soda. Irrigation bottles, Neti Pots, Grossan Irrigators are way better and more cost effective than buying tons of Simply Saline or Ocean.
Irrigate at least a half hour before bedtime in order to drain the water from your sinuses before sleep. Tilt your head around on each side to drain excess water so that you don't leak water when you lean over later Smile

2. Get tested for allergies. Prescription allergy meds are better than over the counter, as they can pinpoint and treat your individual allergies with cutting edge medicine. Get the newest medicine from your doctor rather than mindlessly taking Sudafed or Claritin. I am on Xyzal, which is even better than Singulair for my dust mites, dust, mold, and outdoor allergies.

3. Try a Prescription Steroid Spray. I find Flonase to be the most powerful. Nasonex is good, too, and Rhinocort is the least potent but still works.

4. Mucinex is supposed to loosen up and liquify the mucus - I find it works mildly well, and helps in combination with all these things. If you want to save money somewhere, this is probably the least potent thing and the most skippable.

5. DO NOT USE AFRIN regularly, only for short periods like major colds or allergy attacks.

6. DO NOT USE SUDAFED regularly unless you have MAJOR seasonal allergies or a cold and swelling. It will dry you out so much that your nasal tissue will feel dry and raw, you won't be able to wear contacts easily, and all it does is decongest - just like the Saline Irrigation. ENTS that tell you to use Sudafed or Claritin D or anything D do not understand ENS and how dried out we already are.

7. Humidifiers are great if you are in a dry place or during winter. Get a humidity monitor and aim for around 40% - over 45% promotes mold, which is pretty much a universal allergen. I like the humidifiers without replaceable filters - those things get gross and moldy fast. I buy warm air humidifiers from the drugstore and just clean them regularly with vinegar and a bit of bleach.

8. Take showers before bed.

9. Drink lots of water to relieve congestion.

10. If your ENT does not believe in ENS, make sure he/she at least believes and treats your symptoms, which can be like atrophic rhinitis. Find a new ENT if they tell you your symptoms are in your head, like their crazy patient who thinks that they have a lump in their throat which is really their adam's apple...thanks NYU for that one!

11. If family or friends are not understanding, stop going to them for support and come online instead. You will only feel worse turning to people who are unsupportive, even if you think they should be supportive. Give them info but get help from others who understand.

12. If you are emotional, beware! Crying makes it worse...a good cry sometimes is inevitable, but forget falling asleep easily afterwards. Crying must be followed with irrigation!!!

13. Steam helped me somewhat during the dry days of winter. If I felt dry after irrigating but wanted to be able to sleep soon, and not have to drip from irrigation again, I'd put my head over the hot pot SmileOr shower.

14. Tea also loosens things up like steam. Or any hot liquid.

15. Ponaris seemed to stick to my mucus and make it even thicker. I would only use this (in my saline mix) if I were very dry, because it just added another layer of thick substance in my nose otherwise. Nozoil is similar but in a spray form, and harder to find in the
US (only online).

16. Winter can be rough when the heat is on high and the air is so dry. Even with humidifiers, the air is just dry, so if you can stand it, turn down the heat. Your nose will thank you and so will your body if it helps you sleep.

17. If you travel and want to bring your own salt mixture on a plane, be prepared to explain yourself at the security. I must be high on the list of cocaine smuggler suspects by now, but I don't feel like paying for tons of travel sized saline packets.

18. Be patient. Try to get implants or find insurance that will help you get them. Be good to yourself and surround yourself with kind and understanding friends and family. Acknowledge the anger and disappointment, but realize that the main culprit is not one evil doctor but a system that refuses to acknowledge the truth about this surgery. Put your anger into understanding this for yourself and thinking about how to help change it, even in your own small way Smile

19. I have notice very little relief with any diet change. All food related nasal impact was so temporary for me that I did not see a need to eliminate anything. Increasing spice and seltzer water is always helpful for the sinuses!



Posted by Chris Martin (author of the self help book on ENS - "Having Nasal Surgey? - Don't You Become an Empty Nose Victim!"):

Having Nasal Surgery? Don’t You Become An Empty Nose Victim! includes 38 pages of non-surgical and surgical treatments for empty nose syndrome (ENS). Many treatments for ENS can also effectively treat sinusitis, allergic rhinitis and postnasal drip. I would like to elaborate upon the treatments in this blog, so as to offer additional food for thought, with the belief you can at least experience some improvement. Many of these treatments are important for general nasal health rather than specifically for ENS, and many are particularly beneficial for ENS sufferers who also have allergy or sinusitis issues. Consequently, some might seem more applicable to ENS sufferers without any additional conditions than others. However, as noted in Having Nasal Surgery? many ENS sufferers have allergies because allergies often lead to enlarged turbinates, which doctors resect. My recommendation to you is to ensure that you are doing treatments from Principles 1, 2, 3, which are to thin mucus (e.g., by irrigation), to keep good blood supply to the nose (e.g., by exercise), and to relax (e.g., by a good sleep). The three examples I cited - irrigation, exercise, and good sleep - are perhaps the most critical activities an ENS sufferrer can do to manage his or her symptoms. Then take some additional thoughts from this blog post and incorporate them into your own treatment plan as you see fit. Just take a few of the ideas posted here, not all of them, so that you will actually do it. I hope this post is useful for you, the reader. It is one of the hardest for me to write, as it is not easy to pinpoint all of the interventions for various nasal problems, but I want to leave you with this additional food for thought. Remember, it is only you, no one else, who holds the keys to taking control of your health.

I acknowledge these treatments do not constitute surgical remedies or a cure; my hope in the surgical domain is that while Alloderm placed into the septum offers relief and does not resorb, doctors need to find materials and perfect techniques that might make for a suitable implant in the lateral wall as well. That’s the next step in this surgical area, in my opinion. That’s my hope for doctors as they continue to perfect and refine implant surgeries….

Now, just as it is stated in Having Nasal Surgery?, it should also be stated here that treatments discussed do not constitute medical advice and I strongly recommend you discuss treatment strategies with your doctor prior to attempting any of the ones recommended here.

Before proceeding further, I must review the 3 guiding principles for good nasal health, my 2-step plan, and provide the outline of my non-surgical treatments in Chapter 9 of Having Nasal Surgery?:

Three Guiding Principles for Good Nasal Health:

Principle 1: Keep the nose moist while keeping mucus moving.

Principle 2: Maintain blood supply to the nose by stimulating remaining turbinate tissue.

Principle 3: Relax.

Below is the 2-step plan as I wrote on pages 115 and 116 of Having Nasal Surgery?
With these 3 principles in mind, I recommend a simple 2-step approach for taking control of your nasal health:

1) Seek to incorporate 1-2 treatments from each of Principles 1, 2 and 3 in your daily routine. That is a total of 3-6 treatments per day. You might write down specifically what you are going to do, which will encourage and remind you to actually do it. You should also prioritize what is most important. An example treatment plan might be doing pulsatile irrigation 2 times per day, drinking eight 8-ounce glasses of water per day, exercising 3 times per week, and sleeping 8 hours per night. In my own experiences, I find exercise, sleep and irrigation to be the three most important treatments for ENS. The treatments need to be well-rounded, which is why I suggest to select some from Principles 1, 2 and 3. Of course you can do as many treatments as you wish, but you should stick to what you know you can do faithfully; otherwise you will lose track and not do it. Remember, you will need to talk with your doctor about these treatments before attempting them. Your doctor must be a key play in helping you diagnose your specific medical problems and he or she might recommend or prescribe medications or other treatments.

2) If you are diagnosed with ENS and these treatments have not improved your breathing difficulties, you should talk with your ENT specialist who can help determine if you are a candidate for implant surgery or make a referral.

Principle 1: Keep the nose moist while keeping mucus moving.

Natural Remedies

a) Saline irrigation
Preservatives to avoid in saline solution
How to irrigate with the Grossan Hydro Pulse
b) Nasal sprays
c) Nasal gels
d) Nasal oils

Medical remedies

e) Irrigation with antibiotics
Dr. Grossan’s guide for adding antibiotics to irrigation
f) Guaifenesin
g) Zinc lozenges
h) Allergy shots
i) Antihistamines
j) Three vaccines
k) Decongestants
l) Anti-inflammatories

Dietary remedies

m) Plenty of fluids
n) Hot tea with lemon and honey
o) Chicken soup
p) Vitamins (particularly A and D)
q) Dietary considerations
Products to avoid
Foods that promote healthy sinuses

Environmental remedies

r) Environmental considerations
s) Humidifier
t) Good hygiene

Principle 2: Maintain blood supply to the nose by stimulating remaining turbinate tissue

a) Exercise
b) Swimming
c) Warm packs
d) Other methods of increasing blood flow
Acupuncture

Biofeedback
Inversion technique

Principle 3: Relax.

a) Sleep
b) Reduce stress
Tips to reduce stress

The primary additional tips I would like to suggest center around irrigation, vitamins and supplements, and dietary considerations.
These are all non-surgical, mostly natural remedies that are not intended to cure ENS, but might help you cope better. This is particularly applicable and true for people who suffer from not only ENS, but have concomitant problems of sinusitis, allergies or asthma as well. We need to take care of all conditions we might have, as we are only as strong as our weakest link. Since many ENS sufferers suffer from other conditions as well, I trust these treatments are useful so our entire body can heal. In any case, the important key to remember is that you, no one else, must be ready and willing to take control of your health. I am confident many doctors would agree with that assertion. You must want to get or feel better, and be motivated to do it. No one else will do that for you.

The additional tips are organized as follows:

1) New tip on how to get the most out of pulsatile irrigation.

2) Strategies to further thin mucus, thereby bolstering effectiveness of irrigation: steam inhalation and taking warm showers before and/or after irrigation.

3) Chris’ vitamins and supplements to consider (some of which are cited in Having Nasal Surgery?):
· Quercetin with bromelain
· Flaxseed oil or fish oil
· Multi-vitamin (which one to select)
· Acidopholus
· New Chapter Host Defense

4) The antihistamine spray Astelin

5) Food tips:
Avoid dairy products and allergenic foods. Do substitutes for milk such

as rice, oat, nut, coconut and almond milk.
Avoid sugar.
Choose foods that are organic.
Consider food supplements – try garlic, onion, oregano.
Chew some sugar-free gum for good oral hygiene.
The best hot tea.

6) Before you get medicine again, get your mucus cultured.

7) Try acupressure.

8) Try craniosacral therapy.

1) New tip on how to get the most out of pulsatile irrigation…

I have been irrigating my sinuses with my head centered and leaning forward over the sink for years. This is the method recommended by Dr. Grossan, as it avoids the potential of getting water into the ears via the Eustachian tube. It is the method shown on videos demonstrating how to perform pulsatile irrigation. I believe this method is effective, but I would like to offer a more aggressive method for irrigating, as recommended to me by Dr. Tichenor (www.sinuses.com). This method might be particularly beneficial for cleaning the nose of an ENS sufferer who has thick, viscous mucus as well as sinusitis and postnasal drip sufferers. This method consists of tilting your head to the side, so that your head is parallel to the ground. Make the sure the stream of the irrigation is only 1” high and the pressure is low. Then irrigate into the lower nostril for about 4 to 5 seconds or 15-20 cc’s, lift your head up and let the water drain out of your sinuses. If you find water gets into your ears, then lower the pressure or perform the irrigation for fewer seconds. After you are done irrigating 3 or 4 times on the one nostril, proceed to irrigate the other side.

I had some difficulties getting the irrigation into my ears when I first began irrigating in this fashion, but have learned how to remedy that. After my nasal irrigation is complete, I put my head under the bath faucet and turn the water on warm (not hot) and put my head under it. This helps to stimulate the autonomic nervous system and thereby drain water that might otherwise get clogged in my sinuses. Once I have done that, then I proceed to do the throat irrigation. (I do not use salt when I irrigate my throat).

I use the Hydro Pulse as my pulsatile irrigator. The Hydro Pulse pulsates at a rate that stimulates the cilia to their natural rhythm. I find the Hydro Pulse to be gentle and soothing on the sinuses. I am also a firm believer in using the Breathe-ease XL solution, which I believe is the best saline solution for nasal irrigation. This solution was very carefully calibrated by Dr. Grossan, and it is based upon a Locke-Ringer's solution, which medical journals have found to be more effective than saline alone. So if you are looking for optimal health, select the Hydro Pulse and Breathe-ease XL.

2) Strategies to further thin mucus, thereby bolstering effectiveness of irrigation: steam inhalation and taking warm showers before and/or after irrigation.

Strategies to help thin mucus should be beneficial to ENS sufferers who have thick, viscous mucus and a diminished mucociliary clearance system. Of course, allergy and sinusitis would also benefit from these strategies. Before you irrigate (or immediately after you irrigate, for that matter), you might wish to try steam inhalation. Steam inhalation will help to thin the mucus, which will enable the irrigation to be more effective.

On a personal note, I add about 5 drops of eucalyptus oil to the water after steaming it in order to provide the steam with the analgesic (pain-relieving) and antibacterial properties of eucalyptus oil. This oil can be purchased at many health food stores or online. However, it should be noted to not add more than the suggested amount of oil and that “Certain people should avoid eucalyptus steam inhalation, such as those with heart conditions, central nervous system disoders, and pregnant women. Infants, children, and elderly people may not be able to respond appropriately to the heat. (Source: Author Cathy Wong at http://www.about.com/).

Another option is to take a shower immediately before or after an irrigation. Have warm water pour down on your sinuses and you might actually feel the drainage occur. The heat and moisture from the water will certainly help to thin mucus.

3) Chris’ vitamins and supplements to consider (some of which are cited in Having Nasal Surgery?):

· Quercetin with bromelain
· Fish oil or flaxseed oil
· Multi-vitamin (which one to select)
· Acidophilus
· New Chapter Host Defense

I take a number of vitamins and supplements that I believe are helpful for treating my conditions of empty nose syndrome, sinusitis and allergic rhinitis. Perhaps these vitamins and supplements are more applicable to those with sinusitis and allergic rhinitis, but they could be considered by ENS sufferers who have either of these conditions as well. These supplements are generally helpful for healthy sinuses and immune system improvement. My opinion is that vitamins and supplements are useful, but they are not a substitute or as powerful as a healthy diet – what you eat and drink. It is easy to get lost in the vast array of supplements and vitamins that could potentially help us, and perhaps overspend, and if you have that type of money, go for it. But many of us, particularly with ENS, are on limited budgets and don’t have endless money. I would thus caution the reader to simplify and focus on those vitamins or supplements that are going to be most helpful for you. Here are the vitamins that I use and find helpful. I do not wish to go into great detail about the properties of these supplements, but suffice it to say some general statements about them:

a) Quercetin with bromelain.

This is a classic combination that helps to provide you to maintain proper functioning of the body’s histamine response, thereby reducing inflammation. While ENS sufferers often have inflammation, many also suffer from allergies and sinusitis. Quercetin is particularly beneficial for allergies while bromelain is beneficial for sinusitis. Quercetin is an antioxidant that has antihistamine properties, which is why it is recommended for people with allergies, while bromelain, a pineapple-derived enzyme that is anti-inflammatory, is added to enhance the absorption of Quercetin. As noted in Having Nasal Surgery?, studies have in fact shown that bromelain is helpful in improving sinusitis symptoms. These pills help enhance respiratory function and support a healthy immune system.

b) Fish oil or flaxseed oil

Taking these healthy fats are good for your heart and immune system. Both fish oil and flaxseed oil are excellent sources of the Omega-3 fatty acid, a “healthy fat.” Both fats might not only help with heart health and immune system functioning, but are also touted as helpful to brain and mental health. It is possible that they might even help prevent against depression, from which many with ENS suffer. As for the differences between flaxseed oil and fish oil, flaxseed oil contains only alpha- linoleic acid (
ALA), which is the parent compound from which other omega-3 fatty acids – eicosapentaenoic acid (EPA) and docosahexaenoic acid (DHA) - are derived. This means your body must do the conversion to the other forms it needs, which are EPA and DHA. Conversely, fish oil contains the EPA and DHA and thus provides them directly to your body without the need for conversion.

c) Multi-vitamin

As a measure to promote general good health, multi-vitamins are useful. I use a male multiple vitamin (Solgar) each day, which consists of many vitamins, minerals and herbs. When you go to the grocery store or health food store, the selection of vitamins is vast. My logic is, instead of buying all of the vitamins separately, why not simply purchase a strong multi-vitamin that contains all of the other vitamins and herbs? This brand of vitamins is expensive – compared to other inexpensive multi-vitamins that consist of far less potency – because these multi-vitamins contain strong doses of Vitamin A, Vitamin B2, Vitamin B6, Vitamin B12, Vitamin C, magnesium, zinc, calcium, selenium, chromium, stinging nettles extract, carotenoid mix, and so forth. So I think it’s worth the cost.

d) acidophilus

The probiotic acidopholus is important for good digestive and, by extension, sinus health, particulary for those who have been on antibiotics. I take Advanced Acidophilus Plus (Solgar) each day. One capsule consists of 250 million microorganisms of lactobacillus acidophilus and 250 million microorganisms of bifidus lactis. These good bacteria help to maintain healthy digestive health – and offer advantages to other areas of our body as well. A major advantage of acidophilus is the suppression of candida, which is an overgrowth of yeast. It is particularly important to take acidophilus if you are on antibiotics, because the antibiotics will kill not only the bad bacteria, but the good bacteria in the gut as well, leaving your digestive system out of whack. I had to be on a strong antibiotic for 8 weeks this year, and you can bet that I was taking these pills throughout the course of treatment. It is important to refrigerate these pills to ensure that the probiotic microorganisms are preserved. It amazes me how every system in our body is intimately connected. The same is true with digestive health and sinusitis. Probiotics are a hot topic in medicine today and it just makes good sense to take these for good health.

e) New Chapter Host Defense.

This product is a great immune system booster for ENS sufferers who also have recurrent sinus infections. New Chapter Host Defense is a combination of organic mushrooms that help to boost immunity. If you suspect low immunity or have recurrent sinus infections, this might be a worthwhile supplement to try. This product was recommended to me by a doctor who gives me acupuncture. This product claims it helps to increase natural killer cell activity by up to 300%. People who have chronic sinusitis often have weakened immune systems, so this product can help improve immunity. It is expensive, about $39.95 for a 30 day supply in various health food stores, but can be purchased at a lower price by a savvy consumer on the Internet.

One last supplement to comment about: I must add that slippery elm bark is a product that can help soothe minor irritated throats. I have not had great success with it, but it might work for you.

4) The antihistamine spray Astelin.

This spray has been very effective for me, as it is reported to be effective for ENS sufferers who have allergic rhinitis or vasomotor rhinitis. I use Astelin on a daily basis and I find that it provides great relief for my allergies. Astelin is unique in that it offers an antihistamine effect for both seasonal allergic rhinitis and vasomotor rhinitis. It helps those who are troubled by seasonal allergens, such as pollen, mold and ragweed, and environmental irritants, such as car fumes and perfumes. I should note that it is reported to cause drowsiness and has a bitter aftertaste, but I would counter that with the effects of it are solid and proven effective for me.

5) Food tips:
Avoid dairy products and allergenic foods. Do substitutes for milk such as

rice, oat, nut, coconut and almond milk.
Avoid sugar.
Select organic foods.

Consider food condiments – try garlic, onion, or oil of oregano.
The best hot teas: throat coat and breathe easy.


Having Nasal Surgery? Don’t You Become An Empty Nose Victim! provides discourse on the above topics, but I must acknowledge there is so much information available on what foods are best to eat that I do not wish to discuss these topics in-depth. I would prefer to hit the highlights and simply acknowledge modifications I have made in my own life, with the hope that it might help you as well. The discussion here is focused on helping those people who want good general health; it is not geared toward solely an ENS sufferer with no other conditions, but more toward patients with sinusitis or allergy problems.

a) Avoid dairy products and allergenic foods. People who have chronic postnasal drip would do well to heed this advice. It is a well-known fact that cow’s milk is highly allergenic. There are plenty of substitutes for cow’s milk that are available including rice milk, coconut milk, nut milk, almond milk, and oat milk. I appreciate what Dr. Ralph Metson and Steven Mardon wrote in the Harvard Medical School Guide to Healing Your Sinuses about food allergies: “The tip-off that such an allergy may be present is when postnasal drip is the primary symptom.” It is later written, “Milk and wheat are the two foods that most commonly cause the allergic reaction that leads to excess mucus production and troublesome postnasal drip.” The protein in the milk causes mucus production and, while it has been recommended that dairy might help provide nasal resistance for the ENS nose and increase mucus production (which it does) at certain Internet locations, and there might be some merit to this claim, I would contend that it is better to find ways to thin the mucus to help avoid an infection, particularly if you are prone to sinus infections. The primary way to determine if a food allergy is present is by doing an elimination diet. Common food allergens include milk, wheat, corn, gluten, egg, soy, yeast, and sugar. So I suggest trying to eliminate dairy products for a week and see how you feel or if you notice any changes. The key here with eating is simply to be perceptive to how your body responds to different foods; the effects may be subtle, but nonetheless profound. For example, I have noticed I breathe significantly more comfortably when off the milk; granted, I have implants that do provide resistance, but it is a good feeling to have that mucus thin. I also like the suggestion by Carolee Bateson-Koch in Allergies: Disease in Disguise where she suggests eating 70% raw food and 30% cooked food (which has less nutritional value); and she also suggests eating different foods on a regular basis rather than eating the same food over and over and developing an allergy to it.

Books on the topic of food allergies:
You might wish to read “Allergies: Disease in Disguise” by Carolee Bateson-Koch, D.C., M.D. or;
buy a couple of cookbooks such as “The Whole Foods Allergy Cookbook” by Cybele Pascal (delicious recipes!) or “The Allergy Self-Help Cookbook” by Marjorie Hurt Jones, R.N.

b) Avoid sugar, particularly if you have Candida. Many people with ENS have been on repeated courses of antibiotics throughout their past, which leaves them at increased risk of having Candida albicans, which is a yeast overgrowth. Patients are at-risk for candida because antibiotics kill off the good bacteria. Generally a special diet free of sugar foods or those containing yeast as well as antifungal medications are used to combat the Candida. (There are also cleanses out as well). Of significance: sugars help to rapidly multiply the yeast in the body. People who crave such sugars might very well have a yeast infection. Avoid it where you can. Even fruits have sugar in them, and you might do well to substitute vegetables for fruits for a short term while you are attempting to get your candida under control. Some people have found success with antifungal medications, but you will of course need to talk with your doctor about that.

Books on the topic of Candida:
Read “The Yeast Connection: A Medical Breakthrough” by William Crook, M.D. or the Complete Candida Yeast Guidebook, Revised 2nd Edition: Everything You Need to know about Prevention, Treatment & Diet by Jeanne Marie Martin and Zoltan P. Md Rona

c) Select organic foods to enhance overall health. There is plenty written about eating raw, organic foods, especially the nutritional value in them, which is in stark contrast to the packaged and processed foods in the grocery market, where the goal of the manufacturer is often to make the most profit without regard for the health of the food. Fact is the more natural the foods you eat, the better off you will be. Period. Organic foods are generally high in nutrients, free of pesticides, antibiotics, growth hormones, nor have they been genetically modified. They are pure. Organic foods might cost more, but the improved health is worth it in my opinion.

d) Consider food condiments – try garlic, onion, or oil of oregano.

Food condiments such as garlic, onion, oregano can all add some life to the food – and they are generally very good for you. Garlic is both anti-bacterial and anti-fungal, and thus can helps fight off a yeast overgrowth (Candida albicans). Onion is a rich source of quercetin (remember quercetin?), which has antihistamine properties. It also has antibacterial and anticholesterol properties to it. Oregano is an herb with antibacterial and antioxidant properties. These are just three food condiments that can provide you with good health.

e) Chew some sugar-free gum for good oral hygiene. As noted in Having Nasal Surgery?, good oral hygiene is important for ENS and sinus sufferers given the close proximity between the mouth and sinuses. In September 2007 (shortly after my book was released), the American Dental Association said that sugar-free gum might help prevent cavities, reduce plaque and strengthen teeth. Specifically, it found that chewing gum for 20 minutes after meals three times a day increases the saliva production, which in turn helps to neutralize plaque acid and strengthen teeth. It is important for ENS sufferers to have good oral hygiene, as the mouth is in close proximity to the sinuses, so chewing gum should be important for us as well. Our bodies are like a large interdependent system and every organ is somehow connected to every other organ, so we need to take care of the whole system lest any part dysfunctions and we become enslaved to the weakest link. Granted, I am not aware of any studies, but I imagine this increased saliva might also help to thin mucus as well, and thereby provide benefit to the throat and digestive system. In any case, I have been chewing sugar-free gum for a while and my recent dentist visit revealed I have no more cavities and no gingivitis.

f) The best hot teas: Throat Coat and Breathe Easy.

As discussed in Having Nasal Surgery? hot tea with lemon and honey is an excellent mucus thinner. A few cups of day is recommended for good health, and even more if you notice you might be coming down with or have a sinus infection. I find teas soothing on my throat and great for sinus health. I have tried many teas in my life, but my personal preference is the organic teas made by Traditional Medicinals (http://www.traditionalmedicinals.com/). Specifically, my favorite teas are Throat Coat and Breathe Easy. Throat Coat includes a blend of herbs, including licorice root, Echinacea, cinnamon bark. It really does coat my throat. The other tea I enjoy is Breathe Easy, which also includes the herbs licorice root, eucalyptus leaf, peppermint leaf, ginger rhizome, among others. Both of these teas, in my view, are among the best for sinus health. As an aside, I find that deglycyrrhizinated licorice tablets from my health food store helps to take care of any acid reflux I might have, in addition to just slowing down in life. (People who seem to be very busy and get poor sleep are probably at higher risk for acid reflux.)

6) Before you get medicine again, get your mucus cultured.

This is a basic recommendation for those who might have or be at risk for either a bacterial or fungal infection, but I cannot emphasize it enough. It is my understanding that cultures might not be cost-effective and they take more time for the doctor to perform and interpret, and the insurance company might not reimburse that well. On top of that, some patients might be anxious to try medicine if they sense an infection. Consequently, some doctors do not culture before prescribing medicine, instead prescribing medicine based solely on past experiences with patients who had similar problems and/or the patient’s history. Unfortunately, if you go on a medication such as an antibiotic, it would be good to know that you have a true sinus infection. In my 14+ years of suffering from sinus infections, not one doctor did a culture. Can you believe that? Recently, my doctor decided to do a culture, which showed that I had a staph aereus infection, which is a more common but serious type of infection among patients who have chronic sinusitis. I was put on a 60-day course of Levaquin, 500 mg, which is the strongest oral antibiotic. Some patients with chronic sinusitis need to be put on an antibiotic for 3 to 8 weeks, while I have seen it recommended on the Mayo Clinic website for 3 to 12 weeks. Infections can be intermittent for long periods of time, so it naturally follows that a 10 day course of Levaquin might not clear the infection totally, but a longer course might be needed instead. Of course, it is very important to be on probiotics while on antibiotics because antibiotics kill the good bacteria in the gut.

7) Try acupressure.

Acupuncture is discussed in Having Nasal Surgery? but a treatment regime would not be complete without discussing acupressure. Acupressure is an ancient practice that where you can use your fingers to stimulate key points on your skin that will in turn promote the body’s self-healing processes. Getting that increased blood flow to the nose is important to ensure improvement of nasal sensations. And there are key points for people with nasal problems, such as placing some pressure underneath your cheek to relieve nasal congestion or in the web between your thumb and pointer finger. I enjoy doing acupressure for about 10 minutes each day and it does seem to put me in a deeper state of relaxation while promoting healing. Give it a shot. You won’t need to spend any money doing it.

Book on acupressure:
A very comprehensive book on acupressure is Acupressure’s Potent Points: A guide to self-care for common ailments by Michael Reed Gach.

8) Try craniosacral therapy.

Craniosacral therapy is a light touch therapy that a therapist does on you to improve the functioning of the central nervous system. This technique enhances the craniosacral system, the area in which the brain and spinal cord function. This generally consists of a one hour session that might run in the ballpark of $50-$65 and it usually does not get reimbursed through health insurance; you might be able to get it reimbursed through Flex dollars if your company offers it and your doctor agrees to write you a script for it. Although it is not reimbursed, it’s not voodoo science; it’s based on a medical model, developed by a neurosurgeon, and most of all it works. I believe – and it has been my experience – that this therapy does in fact enhance nervous system functioning. This is a particularly beneficial therapy for people who have incurred head trauma (or nasal trauma) to restore the nervous system health. When I told my doctor who does acupuncture that I believed craniosacral therapy seemed more effective than acupuncture, he was not surprised. I have talked with other ENS sufferers who have also benefited from craniosacral therapy. Give it a shot.

Thanks for reading my additional thoughts and recommendations for non-surgical, primarily natural treatments for ENS, sinusitis, allergic rhinitis, and postnasal drip. These are not cures, as they do not alter the nasal anatomy to reshape the nose back to normal from an overly empty nose, but they might offer symptomatic relief. And they can be of great benefit. I appreciate your interest in treating your nose and hope these ideas are helpful to you, or at least food for thought from one patient to another.

 


Tips suggested by “Anthony”:

 

-Taking vitamin A/D helps the mucosa produce mucus and sustain itself. It makes my nose less dry.(atrophic rhinitis has been associated with vitamin A deficiency)  -The proteins in Milk and eggs also help the mucosa.  They will make your mucus thicker, and this may help your nose feel less open.

 

 -I've used Glucosamine chondrin and it had a strange effect on my nose.  It helped me a lot for about a week but then the effects kind of diminished.

 

 -The best diet for me consists of fruits, vegetables, foods high in protein, and water.  Things that should be avoided are junk food, over eating, and not getting the proper nutrition and vitamins.  I have talked to a lot of ENS sufferers and they mentioned that ever since they've had ENS, they started to eat more and more.  This is true for me too. Recently I've limited the amount of food I eat and noticed such a difference in my entire body.  all the fat and cholesterol from junk food will damage your cardiovascular health, and this will cause your tissues to get less oxygen and nutrients, and more toxins.  If you want your body to heal than keep it in good health by exercising, and eating right, so that your body can regenerate.

 

 -Applying Nouricel-MD topically to my turbinates has benefited me a lot.  I use a Que tip and I message the gel onto my turbinates/septum/lateral wall, and it stimulates the tissue to repair and grow.  TNS Recovery Complex is the only product containing a professional concentration of patented NouriCel-MD. NouriCel-MD contains an array of natural human growth factors, proteins, amino acids, antioxidants, and soluble collagens,  -I've started doing a technique where I use gravity and muscles to force blood into my turbinates.  Basically I lay on my stomach on my bed with the upper half of my body hanging off the bed and my nose facing down toward the ground and the bed, and my turbinates fill up with a decent amount of blood. but then while in this position I try to push all the blood to the front of my nose, by doing what you do to make your face red and filled up with blood. I apply pressure on my eyes and my upper cheeks with my hands so that they don't fill up with too much blood. And when I do this my turbinates fill up with more blood than they ever have(since I've had ENS). If I do this a one or 2 times a day, it makes a huge difference in how my nose feels.  If you try this make sure to never force to much pressure on your eyes, ears or brain, because you don't want to over do it and make a blood vessel burst.  Also if you do this technique too many times a day it may give you a headache.  This exercise is really just meant to get some blood in your turbinates, and prevent further atrophy.  This is the position you need to be in for this technique to be effective.

 

-Sleeping is necessary for your body to regenerate, so if you're using growth factors or healing from a surgery, its very important that your letting your body get enough sleep to function.

 

 

 

David Posted: Thu Jan 12, 2006 3:39 am: My Survival Tips:

 

Here is a list of things that I do that have worked for me. But as always, "your mileage may vary"...

 

1. Saline Rinse 2-3 times daily. Inverted in the tub works best. I haven't noticed any difference with different recipes so I just use plain salt and tap water. Lying flat on my back for about 5-10 minutes afterwards helps the excess water drain out.

 

2. Sesame Oil 2-3 times daily. I use a formula I got from Mayo during my visit there. It also contains rose/geranium for a pleasant scent. I've found I need to apply it about 10 minutes after the rinse so it doesn't get washed out with the water.

 

3. Swimming Nose Plugs. I buy them at sporting goods stores. I wear them when the pain is bad and on planes or anywhere else with harsh air.

 

4. Cogenten/Benzatropine. The doctors at Mayo suggested that a trycyclic anti-depressant might help relieve the pain I had from ENS. I tried one and it did. However, the tricyclics are "old school" meds with lots of nasty side-effects. I had my psychiatrist help me find a medicine that causes dry mouth, but is otherwise benign. He found Cogenten and it has given me about a 50% reduction in the daily pain I live with. It seems that whatever causes dry mouth reduces my pain.

 

These items have been the most helpful to me in the past 7 years I've been dealing with ENS. I hope some of them help you too.

 

 

Mark Posted: Thu Jan 12, 2006 4:36 pm:

 

Ayr saline nasal gel - applied inside the nostril - last several hours or more and helps with the dryness feeling.

 

Saline Bottle - I have one in the car and at work - use it several times throughout the day as needed to help with dryness

 

Beer/Alcohol - in moderation it helps or makes my nose feel fuller for several days.

 

vaporizer or humidifier used at night helps me sleep and helps with dryness.

 

Swimming - great exercise for ens vicitims who otherwise can't run due to suffocation

 

Steam room - great break during the day if you have access

 

Information about Saline Irrigations:

 

 

 

 

Matt Posted: Wed Nov 15, 2006 11:46 pm: My Ratings of Nasal Washes etc:   

 

Hello Friends and ENS sufferers. I am posting my ratings of various nasal lubricants and what has been effective for ME.

 

Of course keep in mind that we are all different, and what has or hasn't worked for me, may not be the case for you. Alas, hopefully this will be of interest to those on the quest for your own best. Good luck.

 

Regards,

Matt

 

Like many of you, I have tried a myriad of products. Here are my power rankings: 10=panacea, as close as I remember breathing great

0=crapper, did little, or in fact irritated.

 

Ocean spray: One of the first salines I had ever tried (circa,1993). It seemed ok at the time until nose became more dry over the years. Negatives: Contains preservatives (benzalkonium chloride), and inflated cost for saline due to the "ocean" label.

Overall rank: 2

 

ARY Gel, but as a metered spray: Not good. They added aloe, and for whatever reasons, this product would cause my nose to stick shut almost instantly as if it were glued--for me this means a crapper. I would give this a 0=crapper product, but it does make me sneeze, so it gets a few points. There are many ingredients, including Benzalkonium chloride. Perhaps I am allergic to their formula, hence the sneezes. I will say however, with this reaction, I almost always PRODUCE mucus like crazy, so it feels kind of good in that way for a short while. Rank 3 (only due to allergic reaction)

 

Simply Saline GEL: I was very disappointed from this. I had really liked Simply Salines aerosol saline, and thought that their version of ARY gel would be great. It did relive dryness longer than saline spray, but they added aloe, and it had a bad smell, and flavor when it would PND down my throat. Overall rank: 4

 

AYR Gel (tube-based, not metered pump)

Good ol' reliable for traveling or going to a smoky bar, etc. Unlike their gel spray, AYR in the tube form doesn't cause my nose to glue shut like their pumped product. There is aloe in it, but it doesn't seem as pungent as simply saline's or AYR's spray gel. Also, when compared to AYR's spray-gel, the tube doesn't add Benzalkonium Chloride. Of course, gels=bit messy since you have to use a q-tip or your finger. Rank=6

 

Rhinaris Sesame oil

I was so excited when I first tried this out. It DID seem to keep moisture levels constant for the longest time. However, I began to get annoyed by this product. It will run right back out your nose down your chin. Watch out...that sesame oil is GREASY and will look like you just spilled some nasty McDonalds down your shirt. I also began to get annoyed by the oil's smell and taste. BUT-it does last long. Rank= 6.5

 

Simply Saline sterilized saline (aerosol) I have really liked this product for a few years. I feels so gentle and nourishing to have the aerosol sprayed into nasal cavities. NO PRESERVATIVES (e.g benzalkonium chloride) very nice. Negatives: cost $4-6 bucks/can. Also, as others report, I started to notice that saline often dried my nose out in seconds after it was used. Rank=8

 

Grossans Breathe·EaseXl: NO preservatives at all. Really good if you don't mind mixing yourself. Negative: cost and availability. They say this is more cost effective than purchasing a product like simply saline aerosol.

True, but this will add up over time, I found myself wasting the extra from a mixture, and I couldn't find it locally. In sum, the best "saline only" product. Rank=9

 

Xclear: Well folks, this is it for me, my panacea. Xclear is purified saline, with Xylitol and grapeseed extract. For me this has been the best.

It lasts longer than normal saline (not as long as sesame oil) almost as long as gels--and much easier to spray. It has no smell, and is very soothing. With the Xylitol, it will actually taste mildly sweet if it drips. I use it 2x AM and PM. More if harsh day/conditions. This is available at local health food shop and runs me $12 for a 1.5 oz bottle.

I don't know if I overlooked it, but I don't recall anyone posting on Xclear or Xylitol. Google just Xylitol for yourself. It has some very good qualities to it, and putting this in a nasal wash is just dandy. RANK=10

 

 

 

Posted by TE, co-founder of the forum and ENS Association:

 

Never give in to ENS. Force your self to do all the activities your heart wishes. Try and live the fullest life you can. ENS is just one more piece of luggage you have to carry with you as you age.

Dr. Kern saw my CT in 1999, and told me that I couldn’t benefit from surgery. Baffled and disappointed - I asked him - am I doomed? He answered that not at all, providing I stick to the golden rule:

The golden rule for nasal mucosa's health:

Keeping good blood supply, keeping the nose moist as possible, and exercising the residual neural activity:

 

Blood supply - maintaining low bad cholesterol, and sugars, exercising a lot, and being kind to my heart. Never smoke. Have plenty of sex (the nose is a secondary sex organ - and the highly vascular tissue responds very well to sex. In fact it responses very well to any kind of enjoyable relaxing activity because the nose is full of para-sympathetic nerve system nerve endings and receptors. I also hang my self upside down at least five minutes a day - to increase the blood flow to the head. This gives me almost a half hour of close to a normal nasal sensation.

I Think that acupuncture to the nasal regions can do a lot of good, though haven't tried it yet, but I have seen quite a few encouraging Chinese studies about improving atrophic rhinitis with deep tissue - acupuncture. I have also found that lying down and practicing relaxation with hot wet compresses over my eyes and sinuses, helps a lot. Keeping your sinuses warm at all times is paramount, especially if you live in cold dry areas.

When ever you’re doing something passive -like watching TV - massage the sides of your nose, press down on your turbinate stumps, and massage your sinuses at the sides of your nose and forehead. Do a lot of physical activity which you enjoy, to keep your blood supply network at top shape. If you don’t – the first blood vessels to get clogged are the smaller ones, like the one’s supplying the respiratory epithelium’s surface – the cilia, that will start to degenerate.

 

 

Keeping your nose moist - although it's a drag - it's a must:

 

saline gels, humidifiers at night, drinking lots of water, and hot beverages (not coffee or tea, but hot water, or healthy soups. Fresh real chicken soup for example - is anti-inflammatory, and is very good for increasing nasal humidity), salt+bi carbonated soda irrigations - morning and night.

 

I give lectures sometimes to support myself and: If I'm very dry - this will effect my speech, therefore - five minutes before a lecture begins I'll do some fifty push-ups - this will keep my nose humid enough not to gag - for the next hour.  This again demonstrates the direct connection between blood supply and humidity.

Nasal Neural Activity - I keep an aroma-therapeutic smelling oil bottle in my pocket at all times. I sniff from it constantly.

 

Preserving your residual smelling capabilities is a must: when you smell - more blood rushes to your nasal mucosa, you are focusing your brain on your nose, and your mucosa secretes more moisture - need I say more. I believe that with time - forcing yourself to smell (healthy scents... there are scents that you should avoid - like ammonia, and alcohol - ask your doctor…) you increase the amount of receptors in your nasal mucosa - and where ever nerve endings grow into - along follow the blood vessels, and regrowth of some functioning healthy nasal mucosa.

Another trick I use - is role a nice thin piece of cotton wool, and give it a nice hair thin tip, which I then use to stimulate my nasal mucosa, in any nostril I chose, to evoke a sneezing response. Try and make yourself sneeze a good few times a day. Works wonders.

 

All this above advice is a lifetime mission, and has to be maintained constantly. The old rule applies here too - If you don’t use it - you lose it!

 

 

 

Dr. Houser's suggestions for nasal irrigation:

 

I often advise patients to obtain a Grossan nasal irrigator - a tip to place into the nose; it can be purchased with a special irrigation device from Hydromed (the Hydropulse; 1-800-560-9007).  Saline is usually used in the device.  Packets of specially formulated salt can be purchased directly from Hydromed, or you can mix it yourself (may take some attempts to find the right mix): To make saline: boil 1 quart water, add 1 tablespoon of salt: pickling, canning, or regular, and add 1 teaspoon of bicarbonate to reduce any chance of stinging.  Let the solution cool before use!

 

Additives can also be placed into the irrigation solution.  You would need your physician's approval and prescription for this:

 

Directions for Hydro Pulse Irrigation with Additives.

   Add one teaspoon of salt to Hydro Pulse Basin.

   Add warm water to 500 cc and mix.

   Set the pressure at the nasal tip so that the stream is about one inch high

   Irrigate the nose 300 cc (about 150 cc each side)  to clear the mucus.

   Stop and gently clear the nose.

   Add medication to the remaining 200 cc.

   Irrigate about 100 cc each side till empty.

   Sit quietly for 10 minutes at the sink. No blowing.

   Do not blow the nose for 2 hours

 

Some physicians will add 40 mg of Gentamycin to the 200 cc. Others use Tobramycin esp for patients with cystic fibrosis. Some physicians will add 1/2 of a tube of Bactroban to the 200cc (this is hard to dissolve, but it will - keep mixing!).  Some physicians are using antifungals, as some research has shown a possible link for chronic rhinosinusitis and fungi.

 

If the discharge is purulent, then the patient may be asked to perform irrigation twice per day.

 

Children have used this regimen successfully.

 

Sitting quietly for 10 minutes keeps the solution in longer.

No nose blowing for two hours means less chance of blowing the medicine into the ears via the eustachian tubes.

 

 

Our Mission - What is empty nose syndrome and how it relates to nose surgery and sinus surgery - ENS Articles with info about symptoms such as nasal dryness, sinus infections, sinusitis and nasal pain- Testimonials by people that have had turbinate surgery - Donations - News relating to solutions for empty nose syndrome that include inferior turbinate regeneration involving stem cells and tissue engineering of functional nasal or sinus tissue- Visit the Discussion Forum to discuss ways to cope with empty nose syndrome symptoms and ideas to find medical solutions - The Nose Tutorial includes detailed pictures of the inferior turbinates, middle turbinates, olfactory bulb, and the septum - turbinates tutorial - Respiratory System -empty nose syndrome Survival Tips include ways to keep the nose moist and ways to diminish symptoms such as sinusitis, nasal pain, and breathing difficulties - Links - contact - Be Proactive and promote awareness of empty nose syndrome - Become a Member

The information contained on this site reflects our personal non-professional opinions only, and is in no way intended to replace the knowledge or diagnosis of your doctor. For specific guidance regarding personal health questions, we advise consultation with a qualified health care professional familiar with your particular circumstances.

 
 
  Posts from ENS sufferers