Empty Nose Syndrome
Survival Tips
The following list was found
to be the most popular tips suggested by more then 300 forum members (written by TE):
ü
Daily nasal irrigations of regular
saline are always recommended. Many patients prefer to use Ringer Lactate
solution instead, as they find it's easier on the mucosa than regular saline,
and there are some empirical studies that back up that claim.
ü
Saline, Ringer Lactate, or hyaluronic acid based - nasal mist sprays, or gels, are
always helpful when proper irrigation is not possible.
ü
Sesame oil can help in cases of
extreme dryness and crusts.
ü
Sleeping with a cool mist
humidifier.
ü
Sleeping with a CPAP machine that
has a built-in humidifier.
ü
Some patients respond well to
orally taken vitamin A and D. (be advised that exceeding the upper limits of the daily recommended dosage of these vitamins can be detrimental to your health)
ü
Acupuncture and shiatsu meant to
improve nasal blood supply and nerve function.
ü
Dressing warm, drinking plenty of
water and sleeping in a warm environment.
ü
Regular physical activity and a
healthy life style are most important too.
A collection of tips
posted on the patients forum:
Suggestions by forum member "Erikavs" Apr 23, 2008:
Here
are my tips for ENS management. First, consider my history and symptoms to
assess how my tips might apply to you.
I have ENS-IT following two surgeries (outfracture
and resection), two somnoplasties, and one cautery. All safe alone, but not safe in
conjunction or repetition. My main symptoms before intervention were
postnasal drip, snoring, and increasing congestion/swelling. As ENS progressed
with each procedure, my postnasal drip became thick and sticky mucus that
caused congestion and increasing blockage, and my nasal tissue became dry, raw,
and bled often. After all these procedures and my own self-diagnosis of ENS
from this site, I could no longer sleep through the night without waking up
congested with mucus, and having to rinse out the mucus with saline irrigation.
Now I am recovering with implants from Dr. Houser!!!
For mild ENS as I had at the start:
1. Use Breathe Right Strips instead of more surgery to open up your
nasal passage around your swollen turbinates.
For mild or ENS-IT, I have always had relief from the following
treatments: (Breathe Right Strips made me too dry after I had too much
turbinate tissue removed, but now they are working well with my implants as I
wait for the swelling to decrease).
1. If you have nasal congestion from swollen turbinates,
get into a routine of saline irrigation. Morning and evening has always worked
for me at any stage. At my worst I did it as many times a day as needed. I
don't get much satisfaction from Rhinaris, Ocean, Ayr, or fine spray moisturizers
myself, because my need is to rinse out the mucus sticking to the back -- that
needs a powerful stream, not a fine mist! But moisturizing sprays are helpful,
too, and more portable!
Irrigation will decongest the turbinates and
wash out any irritants, allergens, or mucus. I use the Neil Med Squeeze Bottle
and make my own mixture of salt and baking soda. Irrigation bottles, Neti Pots, Grossan Irrigators are
way better and more cost effective than buying tons of Simply Saline or Ocean.
Irrigate at least a half hour before bedtime in order to drain the water
from your sinuses before sleep. Tilt your head around on each side to drain
excess water so that you don't leak water when you lean over later 
2. Get tested for allergies. Prescription allergy meds are better than
over the counter, as they can pinpoint and treat your individual allergies with
cutting edge medicine. Get the newest medicine from your doctor rather than
mindlessly taking Sudafed or Claritin. I am on Xyzal,
which is even better than Singulair for my dust
mites, dust, mold, and outdoor allergies.
3. Try a Prescription Steroid Spray. I find Flonase
to be the most powerful. Nasonex is good, too, and Rhinocort is the least potent but still works.
4. Mucinex is supposed to loosen up and liquify the mucus - I find it works mildly well, and helps
in combination with all these things. If you want to save money somewhere, this
is probably the least potent thing and the most skippable.
5. DO NOT USE AFRIN regularly, only for short periods like major colds
or allergy attacks.
6. DO NOT USE SUDAFED regularly unless you have MAJOR seasonal allergies
or a cold and swelling. It will dry you out so much that your nasal tissue will
feel dry and raw, you won't be able to wear contacts easily, and all it does is
decongest - just like the Saline Irrigation. ENTS that tell you to use Sudafed
or Claritin D or anything D do not understand ENS and
how dried out we already are.
7. Humidifiers are great if you are in a dry place or during winter. Get
a humidity monitor and aim for around 40% - over 45% promotes mold, which is
pretty much a universal allergen. I like the humidifiers without replaceable
filters - those things get gross and moldy fast. I buy warm air humidifiers
from the drugstore and just clean them regularly with vinegar and a bit of
bleach.
8. Take showers before bed.
9. Drink lots of water to relieve congestion.
10. If your ENT does not believe in ENS, make sure he/she at least
believes and treats your symptoms, which can be like atrophic rhinitis. Find a
new ENT if they tell you your symptoms are in your head, like their crazy
patient who thinks that they have a lump in their throat which is really their adam's apple...thanks NYU for that one!
11. If family or friends are not understanding,
stop going to them for support and come online instead. You will only feel
worse turning to people who are unsupportive, even if you think they should be
supportive. Give them info but get help from others who understand.
12. If you are emotional, beware! Crying makes it worse...a good cry
sometimes is inevitable, but forget falling asleep easily afterwards. Crying
must be followed with irrigation!!!
13. Steam helped me somewhat during the dry days of winter. If I felt
dry after irrigating but wanted to be able to sleep soon, and not have to drip
from irrigation again, I'd put my head over the hot pot
Or shower.
14. Tea also loosens things up like steam. Or any hot liquid.
15. Ponaris seemed to stick to my mucus and
make it even thicker. I would only use this (in my saline mix) if I were very
dry, because it just added another layer of thick substance in my nose
otherwise. Nozoil is similar but in a spray form, and
harder to find in the US (only
online).
16. Winter can be rough when the heat is on high and the air is so dry.
Even with humidifiers, the air is just dry, so if you can stand it, turn down
the heat. Your nose will thank you and so will your body if it helps you sleep.
17. If you travel and want to bring your own salt mixture on a plane, be
prepared to explain yourself at the security. I must be high on the list of
cocaine smuggler suspects by now, but I don't feel like paying for tons of
travel sized saline packets.
18. Be patient. Try to get implants or find insurance that will help you
get them. Be good to yourself and surround yourself with kind and understanding
friends and family. Acknowledge the anger and disappointment, but realize that
the main culprit is not one evil doctor but a system that refuses to
acknowledge the truth about this surgery. Put your anger into understanding
this for yourself and thinking about how to help change it, even in your own
small way 
19. I have notice very little relief with any diet change. All food
related nasal impact was so temporary for me that I did not see a need to
eliminate anything. Increasing spice and seltzer water is always helpful for
the sinuses!
Posted by Chris Martin (author of the self help book on ENS - "Having Nasal Surgey? - Don't You Become an Empty Nose Victim!"):
Having Nasal Surgery? Don’t You Become
An Empty Nose Victim! includes 38 pages of non-surgical and surgical treatments
for empty nose syndrome (ENS). Many treatments for ENS can also effectively
treat sinusitis, allergic rhinitis and postnasal drip. I would like to
elaborate upon the treatments in this blog, so as to
offer additional food for thought, with the belief you can at least experience
some improvement. Many of these treatments are important for general
nasal health rather than specifically for ENS, and many are particularly
beneficial for ENS sufferers who also have allergy or sinusitis issues.
Consequently, some might seem more applicable to ENS sufferers without any
additional conditions than others. However, as noted in Having
Nasal Surgery? many ENS sufferers have allergies
because allergies often lead to enlarged turbinates,
which doctors resect. My recommendation to
you is to ensure that you are doing treatments from Principles 1, 2, 3, which
are to thin mucus (e.g., by irrigation), to keep good blood supply to the nose
(e.g., by exercise), and to relax (e.g., by a good sleep). The three
examples I cited - irrigation, exercise, and good sleep - are perhaps the most
critical activities an ENS sufferrer can do to manage
his or her symptoms. Then take some additional thoughts from this blog post and incorporate them into your own treatment plan
as you see fit. Just take a few of the ideas posted here, not all of
them, so that you will actually do it. I hope this post is useful for you, the
reader. It is one of the hardest for me to write, as it is not easy to pinpoint
all of the interventions for various nasal problems, but I want to leave you
with this additional food for thought. Remember, it is only you, no
one else, who holds the keys to taking control of your health.
I acknowledge these treatments do not constitute surgical remedies or a cure;
my hope in the surgical domain is that while Alloderm
placed into the septum offers relief and does not resorb,
doctors need to find materials and perfect techniques that might make for a
suitable implant in the lateral wall as well. That’s the next step in this
surgical area, in my opinion. That’s my hope for doctors as they continue to
perfect and refine implant surgeries….
Now, just as it is stated in Having Nasal Surgery?, it should also be stated here
that treatments discussed do not constitute medical advice and I strongly
recommend you discuss treatment strategies with your doctor prior to attempting
any of the ones recommended here.
Before proceeding further, I must review the 3 guiding principles for good
nasal health, my 2-step plan, and provide the outline of my non-surgical
treatments in Chapter 9 of Having Nasal Surgery?:
Three Guiding Principles for Good Nasal Health:
Principle 1: Keep the nose moist while keeping mucus moving.
Principle 2: Maintain blood supply to the nose by stimulating remaining
turbinate tissue.
Principle 3: Relax.
Below is the 2-step plan as I wrote on pages 115 and 116 of
Having Nasal Surgery?
With these 3 principles in mind, I recommend a simple 2-step approach for
taking control of your nasal health:
1) Seek to incorporate 1-2 treatments from each of Principles 1, 2 and 3 in
your daily routine. That is a total of 3-6 treatments per day. You might write
down specifically what you are going to do, which will encourage and remind you
to actually do it. You should also prioritize what is most important. An
example treatment plan might be doing pulsatile
irrigation 2 times per day, drinking eight 8-ounce glasses of water per day,
exercising 3 times per week, and sleeping 8 hours per night. In my own
experiences, I find exercise, sleep and irrigation to be the three most
important treatments for ENS. The treatments need to be well-rounded, which is
why I suggest to select some from Principles 1, 2 and
3. Of course you can do as many treatments as you wish, but you should stick to
what you know you can do faithfully; otherwise you will lose track and not do
it. Remember, you will need to talk with your doctor about these treatments
before attempting them. Your doctor must be a key play in helping you diagnose
your specific medical problems and he or she might recommend or prescribe
medications or other treatments.
2) If you are diagnosed with ENS and these treatments have not improved your
breathing difficulties, you should talk with your ENT specialist who can help
determine if you are a candidate for implant surgery or make a referral.
Principle 1: Keep the nose moist while keeping mucus moving.
Natural Remedies
a) Saline irrigation
Preservatives to avoid in saline solution
How to irrigate with the Grossan Hydro Pulse
b) Nasal sprays
c) Nasal gels
d) Nasal oils
Medical remedies
e) Irrigation with antibiotics
Dr. Grossan’s guide for adding antibiotics to
irrigation
f) Guaifenesin
g) Zinc lozenges
h) Allergy shots
i) Antihistamines
j) Three vaccines
k) Decongestants
l) Anti-inflammatories
Dietary remedies
m) Plenty of fluids
n) Hot tea with lemon and honey
o) Chicken soup
p) Vitamins (particularly A and D)
q) Dietary considerations
Products to avoid
Foods that promote healthy sinuses
Environmental remedies
r) Environmental considerations
s) Humidifier
t) Good hygiene
Principle 2: Maintain blood supply to the nose by stimulating remaining
turbinate tissue
a) Exercise
b) Swimming
c) Warm packs
d) Other methods of increasing blood flow
Acupuncture
Biofeedback
Inversion technique
Principle 3: Relax.
a) Sleep
b) Reduce stress
Tips to reduce stress
The primary additional tips I
would like to suggest center around irrigation, vitamins and supplements, and
dietary considerations. These are all non-surgical, mostly natural
remedies that are not intended to cure ENS, but might help you cope better. This
is particularly applicable and true for people who suffer from not only ENS,
but have concomitant problems of sinusitis, allergies or asthma as well.
We need to take care of all conditions we might have, as we are only as strong
as our weakest link. Since many ENS sufferers suffer from other conditions as
well, I trust these treatments are useful so our entire body can heal. In any
case, the important key to remember is that you, no one else, must be ready and
willing to take control of your health. I am confident many doctors would agree
with that assertion. You must want to get or feel better, and be motivated to
do it. No one else will do that for you.
The additional tips are organized as follows:
1) New tip on how to get the most out of pulsatile
irrigation.
2) Strategies to further thin mucus, thereby bolstering effectiveness
of irrigation: steam inhalation and taking warm showers before and/or after
irrigation.
3) Chris’ vitamins and supplements to consider (some of which are
cited in Having Nasal Surgery?):
· Quercetin with bromelain
· Flaxseed oil or fish oil
· Multi-vitamin (which one to select)
· Acidopholus
· New Chapter Host Defense
4) The antihistamine spray Astelin
5) Food tips:
Avoid dairy products and allergenic foods. Do substitutes for milk such
as rice, oat, nut, coconut and almond milk.
Avoid sugar.
Choose foods that are organic.
Consider food supplements – try garlic, onion, oregano.
Chew some sugar-free gum for good oral hygiene.
The best hot tea.
6) Before you get medicine again, get your mucus cultured.
7) Try acupressure.
8) Try craniosacral therapy.
1) New tip on how to get the most out of pulsatile
irrigation…
I have been irrigating my sinuses with my head centered and leaning forward
over the sink for years. This is the method recommended by Dr. Grossan, as it avoids the potential of getting water into
the ears via the Eustachian tube. It is the method shown on videos
demonstrating how to perform pulsatile irrigation. I
believe this method is effective, but I would like to offer a more aggressive
method for irrigating, as recommended to me by Dr. Tichenor
(www.sinuses.com). This method might be particularly beneficial for
cleaning the nose of an ENS sufferer who has thick, viscous mucus as well as
sinusitis and postnasal drip sufferers. This method consists of tilting
your head to the side, so that your head is parallel to the ground. Make the
sure the stream of the irrigation is only 1” high and the pressure is low. Then
irrigate into the lower nostril for about 4 to 5 seconds or 15-20 cc’s, lift your head up and let the water drain out of your
sinuses. If you find water gets into your ears, then lower the pressure or
perform the irrigation for fewer seconds. After you are done irrigating 3 or 4
times on the one nostril, proceed to irrigate the other side.
I had some difficulties getting the irrigation into my ears when I first began
irrigating in this fashion, but have learned how to remedy that. After my nasal
irrigation is complete, I put my head under the bath faucet and turn the water
on warm (not hot) and put my head under it. This helps to stimulate the
autonomic nervous system and thereby drain water that might otherwise get
clogged in my sinuses. Once I have done that, then I proceed to do the throat
irrigation. (I do not use salt when I irrigate my throat).
I use the Hydro Pulse as my pulsatile irrigator. The
Hydro Pulse pulsates at a rate that stimulates the cilia to their natural
rhythm. I find the Hydro Pulse to be gentle and soothing on the sinuses. I am
also a firm believer in using the Breathe-ease XL solution, which I believe is
the best saline solution for nasal irrigation. This solution was very carefully
calibrated by Dr. Grossan, and it is based upon a
Locke-Ringer's solution, which medical journals have found to be more effective
than saline alone. So if you are looking for optimal health, select the Hydro
Pulse and Breathe-ease XL.
2) Strategies to further thin mucus, thereby bolstering effectiveness
of irrigation: steam inhalation and taking warm showers before and/or after
irrigation.
Strategies to help thin mucus should be beneficial to ENS sufferers who
have thick, viscous mucus and a diminished mucociliary
clearance system. Of course, allergy and sinusitis would also benefit from
these strategies. Before you irrigate (or immediately after
you irrigate, for that matter), you might wish to try steam inhalation.
Steam inhalation will help to thin the mucus, which will enable the irrigation
to be more effective.
On a personal note, I add about 5 drops of eucalyptus oil to the water after
steaming it in order to provide the steam with the analgesic (pain-relieving)
and antibacterial properties of eucalyptus oil. This oil can be purchased at
many health food stores or online. However, it should be noted to not add more
than the suggested amount of oil and that “Certain people should avoid
eucalyptus steam inhalation, such as those with heart conditions, central
nervous system disoders, and pregnant women. Infants,
children, and elderly people may not be able to respond appropriately to the
heat. (Source: Author Cathy Wong at http://www.about.com/).
Another option is to take a shower immediately before or after an irrigation. Have warm water pour down on your sinuses and
you might actually feel the drainage occur. The heat and moisture from the
water will certainly help to thin mucus.
3) Chris’ vitamins and supplements to consider (some of which are cited
in Having Nasal
Surgery?):
· Quercetin with bromelain
· Fish oil or flaxseed oil
· Multi-vitamin (which one to select)
· Acidophilus
· New Chapter Host Defense
I take a number of vitamins and supplements that I believe are helpful for
treating my conditions of empty nose syndrome, sinusitis and allergic rhinitis.
Perhaps these vitamins and supplements are more applicable to those with
sinusitis and allergic rhinitis, but they could be considered by ENS sufferers
who have either of these conditions as well. These supplements are
generally helpful for healthy sinuses and immune system improvement. My opinion
is that vitamins and supplements are useful, but they are not a substitute or
as powerful as a healthy diet – what you eat and drink. It is easy to get lost
in the vast array of supplements and vitamins that could potentially help us,
and perhaps overspend, and if you have that type of money, go for it. But many
of us, particularly with ENS, are on limited budgets and don’t have endless
money. I would thus caution the reader to simplify and focus on those vitamins
or supplements that are going to be most helpful for you. Here are the vitamins
that I use and find helpful. I do not wish to go into great detail about the
properties of these supplements, but suffice it to say some general statements
about them:
a) Quercetin with bromelain.
This is a classic combination that helps to provide you to maintain proper
functioning of the body’s histamine response, thereby reducing inflammation. While
ENS sufferers often have inflammation, many also suffer from allergies and
sinusitis. Quercetin is particularly beneficial for
allergies while bromelain is beneficial for
sinusitis. Quercetin is an antioxidant that has
antihistamine properties, which is why it is recommended for people with
allergies, while bromelain, a pineapple-derived
enzyme that is anti-inflammatory, is added to enhance the absorption of Quercetin. As noted in Having Nasal Surgery?, studies have in fact shown that bromelain
is helpful in improving sinusitis symptoms. These pills help enhance
respiratory function and support a healthy immune system.
b) Fish oil or flaxseed oil
Taking these healthy fats are good for your heart and immune
system. Both fish oil and flaxseed oil are excellent sources of the
Omega-3 fatty acid, a “healthy fat.” Both fats might not only help with heart
health and immune system functioning, but are also touted as helpful to brain
and mental health. It is possible that they might even help prevent against
depression, from which many with ENS suffer. As for the differences between
flaxseed oil and fish oil, flaxseed oil contains only alpha- linoleic acid (ALA), which is the parent compound from
which other omega-3 fatty acids – eicosapentaenoic
acid (EPA) and docosahexaenoic acid (DHA) - are
derived. This means your body must do the conversion to the other forms it
needs, which are EPA and DHA. Conversely, fish oil contains the EPA and DHA and
thus provides them directly to your body without the need for conversion.
c) Multi-vitamin
As a measure to promote general good health, multi-vitamins are
useful. I use a male multiple vitamin (Solgar) each
day, which consists of many vitamins, minerals and herbs. When you go to the
grocery store or health food store, the selection of vitamins is vast. My logic
is, instead of buying all of the vitamins separately, why not simply purchase a
strong multi-vitamin that contains all of the other vitamins and herbs? This
brand of vitamins is expensive – compared to other inexpensive multi-vitamins
that consist of far less potency – because these multi-vitamins contain strong
doses of Vitamin A, Vitamin B2, Vitamin B6, Vitamin B12, Vitamin C, magnesium,
zinc, calcium, selenium, chromium, stinging nettles extract, carotenoid mix, and so forth. So I think it’s worth the
cost.
d) acidophilus
The probiotic acidopholus
is important for good digestive and, by extension, sinus health, particulary for those who have been on antibiotics. I
take Advanced Acidophilus Plus (Solgar) each day. One
capsule consists of 250 million microorganisms of lactobacillus acidophilus and
250 million microorganisms of bifidus lactis. These good bacteria help to maintain healthy
digestive health – and offer advantages to other areas of our body as well. A
major advantage of acidophilus is the suppression of candida,
which is an overgrowth of yeast. It is particularly important to take
acidophilus if you are on antibiotics, because the antibiotics will kill not
only the bad bacteria, but the good bacteria in the gut as well, leaving your
digestive system out of whack. I had to be on a strong antibiotic for 8 weeks
this year, and you can bet that I was taking these pills throughout the course
of treatment. It is important to refrigerate these pills to ensure that the probiotic microorganisms are preserved. It amazes me how
every system in our body is intimately connected. The same is true with
digestive health and sinusitis. Probiotics are a hot
topic in medicine today and it just makes good sense to take these for good
health.
e) New Chapter Host Defense.
This product is a great immune system booster for ENS sufferers who also
have recurrent sinus infections. New Chapter Host Defense is a combination
of organic mushrooms that help to boost immunity. If you suspect low immunity
or have recurrent sinus infections, this might be a worthwhile supplement to
try. This product was recommended to me by a doctor who gives me acupuncture.
This product claims it helps to increase natural killer cell activity by up to
300%. People who have chronic sinusitis often have weakened immune systems, so
this product can help improve immunity. It is expensive, about $39.95 for a 30
day supply in various health food stores, but can be purchased at a lower price
by a savvy consumer on the Internet.
One last supplement to comment about: I must add that slippery elm bark is a
product that can help soothe minor irritated throats. I have not had great
success with it, but it might work for you.
4) The antihistamine spray Astelin.
This spray has been very effective for me, as it is reported to be
effective for ENS sufferers who have allergic rhinitis or vasomotor rhinitis. I
use Astelin on a daily basis and I find that it
provides great relief for my allergies. Astelin is
unique in that it offers an antihistamine effect for both seasonal allergic
rhinitis and vasomotor rhinitis. It helps those who are troubled by seasonal
allergens, such as pollen, mold and ragweed, and environmental irritants, such
as car fumes and perfumes. I should note that it is reported to cause
drowsiness and has a bitter aftertaste, but I would counter that with the
effects of it are solid and proven effective for me.
5) Food tips:
Avoid dairy products and allergenic foods. Do substitutes for milk such
as
rice, oat, nut, coconut and almond milk.
Avoid sugar.
Select organic foods.
Consider food condiments – try garlic, onion, or oil of oregano.
The best hot teas: throat coat and breathe easy.
Having Nasal Surgery? Don’t You Become An Empty Nose Victim!
provides discourse on the above topics, but I must acknowledge there is so much
information available on what foods are best to eat that I do not wish to
discuss these topics in-depth. I would prefer to hit the highlights and simply
acknowledge modifications I have made in my own life, with the hope that it
might help you as well. The discussion here is focused on helping those
people who want good general health; it is not geared toward solely an ENS
sufferer with no other conditions, but more toward patients with sinusitis or
allergy problems.
a) Avoid dairy products and allergenic foods. People who have chronic
postnasal drip would do well to heed this advice. It is a well-known fact
that cow’s milk is highly allergenic. There are plenty of substitutes for cow’s
milk that are available including rice milk, coconut milk, nut milk, almond
milk, and oat milk. I appreciate what Dr. Ralph Metson
and Steven Mardon wrote in the Harvard Medical School
Guide to Healing Your Sinuses about food allergies: “The tip-off that such
an allergy may be present is when postnasal drip is the primary symptom.”
It is later written, “Milk and wheat are the two foods that most commonly
cause the allergic reaction that leads to excess mucus production and
troublesome postnasal drip.” The protein in the milk causes mucus
production and, while it has been recommended that dairy might help provide
nasal resistance for the ENS nose and increase mucus production (which it does)
at certain Internet locations, and there might be some merit to this claim, I
would contend that it is better to find ways to thin the mucus to help avoid an
infection, particularly if you are prone to sinus infections. The primary way
to determine if a food allergy is present is by doing an elimination diet.
Common food allergens include milk, wheat, corn, gluten, egg, soy, yeast, and
sugar. So I suggest trying to eliminate dairy products for a week and see how
you feel or if you notice any changes. The key here with eating is simply to be
perceptive to how your body responds to different foods; the effects may be
subtle, but nonetheless profound. For example, I have noticed I breathe
significantly more comfortably when off the milk; granted, I have implants that
do provide resistance, but it is a good feeling to have that mucus thin. I also
like the suggestion by Carolee Bateson-Koch
in Allergies: Disease in Disguise where she suggests eating 70% raw
food and 30% cooked food (which has less nutritional
value); and she also suggests eating different foods on a regular basis rather
than eating the same food over and over and developing an allergy to it.
Books on the topic of food allergies:
You might wish to read “Allergies: Disease in Disguise” by Carolee
Bateson-Koch, D.C., M.D. or;
buy a couple of cookbooks such as “The Whole Foods Allergy Cookbook” by Cybele Pascal (delicious recipes!) or “The Allergy
Self-Help Cookbook” by Marjorie Hurt Jones, R.N.
b) Avoid sugar, particularly if you have Candida. Many
people with ENS have been on repeated courses of antibiotics throughout their
past, which leaves them at increased risk of having Candida albicans,
which is a yeast overgrowth. Patients are at-risk for candida
because antibiotics kill off the good bacteria. Generally a special diet free
of sugar foods or those containing yeast as well as antifungal medications are
used to combat the Candida. (There are also cleanses out as well). Of
significance: sugars help to rapidly multiply the yeast in the body. People who
crave such sugars might very well have a yeast infection. Avoid it where you
can. Even fruits have sugar in them, and you might do well to substitute
vegetables for fruits for a short term while you are attempting to get your candida under control. Some people have found success with
antifungal medications, but you will of course need to talk with your doctor
about that.
Books on the topic of Candida:
Read “The Yeast Connection: A Medical Breakthrough” by William Crook, M.D. or
the Complete Candida Yeast Guidebook, Revised 2nd Edition: Everything You Need
to know about Prevention, Treatment & Diet by Jeanne Marie Martin and Zoltan P. Md Rona
c) Select organic foods to enhance overall health.
There is plenty written about eating raw, organic foods, especially the
nutritional value in them, which is in stark contrast to the packaged and
processed foods in the grocery market, where the goal of the manufacturer is
often to make the most profit without regard for the health of the food. Fact
is the more natural the foods you eat, the better off you will be. Period. Organic foods are generally
high in nutrients, free of pesticides, antibiotics, growth hormones, nor have
they been genetically modified. They are pure. Organic foods might cost more,
but the improved health is worth it in my opinion.
d) Consider food condiments – try garlic, onion, or oil of oregano.
Food condiments such as garlic, onion, oregano can all add some life to the
food – and they are generally very good for you. Garlic is both anti-bacterial
and anti-fungal, and thus can helps fight off a yeast overgrowth (Candida albicans). Onion is a rich source of quercetin
(remember quercetin?), which has antihistamine
properties. It also has antibacterial and anticholesterol
properties to it. Oregano is an herb with antibacterial and antioxidant
properties. These are just three food condiments that can provide you with good
health.
e) Chew some sugar-free gum for good oral hygiene.
As noted in Having Nasal Surgery?, good oral
hygiene is important for ENS and sinus sufferers given the close proximity
between the mouth and sinuses. In September 2007 (shortly after my book
was released), the American Dental Association said that sugar-free gum might
help prevent cavities, reduce plaque and strengthen teeth. Specifically, it
found that chewing gum for 20 minutes after meals three times a day increases
the saliva production, which in turn helps to neutralize plaque acid and
strengthen teeth. It is important for ENS sufferers to have good oral hygiene,
as the mouth is in close proximity to the sinuses, so chewing gum should be
important for us as well. Our bodies are like a large interdependent system and
every organ is somehow connected to every other organ, so we need to take care
of the whole system lest any part dysfunctions and we become enslaved to the
weakest link. Granted, I am not aware of any studies, but I imagine this
increased saliva might also help to thin mucus as well, and thereby provide
benefit to the throat and digestive system. In any case, I have been chewing
sugar-free gum for a while and my recent dentist visit revealed I have no more
cavities and no gingivitis.
f) The best hot teas: Throat Coat and Breathe Easy.
As discussed in Having Nasal Surgery?
hot tea with lemon and honey is an excellent mucus
thinner. A few cups of day is recommended for good
health, and even more if you notice you might be coming down with or have a
sinus infection. I find teas soothing on my throat and great for sinus health.
I have tried many teas in my life, but my personal preference is the organic
teas made by Traditional Medicinals (http://www.traditionalmedicinals.com/).
Specifically, my favorite teas are Throat Coat and Breathe Easy. Throat Coat
includes a blend of herbs, including licorice root, Echinacea, cinnamon bark.
It really does coat my throat. The other tea I enjoy is Breathe Easy, which
also includes the herbs licorice root, eucalyptus leaf, peppermint leaf, ginger
rhizome, among others. Both of these teas, in my view, are among the best for
sinus health. As an aside, I find that deglycyrrhizinated
licorice tablets from my health food store helps to take care of any acid
reflux I might have, in addition to just slowing down in life. (People who seem
to be very busy and get poor sleep are probably at higher risk for acid
reflux.)
6) Before you get medicine again, get your mucus cultured.
This is a basic recommendation for those who might have or be at risk for
either a bacterial or fungal infection, but I cannot emphasize it enough.
It is my understanding that cultures might not be cost-effective and they take
more time for the doctor to perform and interpret, and the insurance company
might not reimburse that well. On top of that, some patients might be anxious
to try medicine if they sense an infection. Consequently, some doctors do not
culture before prescribing medicine, instead prescribing medicine based solely
on past experiences with patients who had similar problems and/or the patient’s
history. Unfortunately, if you go on a medication such as an antibiotic, it
would be good to know that you have a true sinus infection. In my 14+ years of
suffering from sinus infections, not one doctor did a culture. Can you believe
that? Recently, my doctor decided to do a culture, which showed that I had a staph aereus infection, which is
a more common but serious type of infection among patients who have chronic
sinusitis. I was put on a 60-day course of Levaquin,
500 mg, which is the strongest oral antibiotic. Some patients with chronic
sinusitis need to be put on an antibiotic for 3 to 8 weeks, while I have seen
it recommended on the Mayo Clinic website for 3 to 12 weeks. Infections can be
intermittent for long periods of time, so it naturally follows that a 10 day
course of Levaquin might not clear the infection
totally, but a longer course might be needed instead. Of course, it is very
important to be on probiotics while on antibiotics
because antibiotics kill the good bacteria in the gut.
7) Try acupressure.
Acupuncture is discussed in Having Nasal
Surgery? but a treatment regime would not be
complete without discussing acupressure. Acupressure is an ancient practice
that where you can use your fingers to stimulate key points on your skin that
will in turn promote the body’s self-healing processes. Getting that
increased blood flow to the nose is important to ensure improvement of nasal
sensations. And there are key points for people with nasal problems, such
as placing some pressure underneath your cheek to relieve nasal congestion or
in the web between your thumb and pointer finger. I enjoy doing acupressure for
about 10 minutes each day and it does seem to put me in a deeper state of
relaxation while promoting healing. Give it a shot. You won’t need to spend any
money doing it.
Book on acupressure:
A very comprehensive book on acupressure is Acupressure’s Potent Points: A
guide to self-care for common ailments by Michael Reed Gach.
8) Try craniosacral therapy.
Craniosacral therapy is a light touch therapy that a
therapist does on you to improve the functioning of the central nervous
system. This technique enhances the craniosacral
system, the area in which the brain and spinal cord function. This generally
consists of a one hour session that might run in the ballpark of $50-$65 and it
usually does not get reimbursed through health insurance; you might be able to
get it reimbursed through Flex dollars if your company offers it and your
doctor agrees to write you a script for it. Although it is not reimbursed, it’s
not voodoo science; it’s based on a medical model, developed by a neurosurgeon,
and most of all it works. I believe – and it has been my experience – that this
therapy does in fact enhance nervous system functioning. This is a particularly
beneficial therapy for people who have incurred head trauma (or nasal trauma)
to restore the nervous system health. When I told my doctor who does
acupuncture that I believed craniosacral therapy
seemed more effective than acupuncture, he was not surprised. I have talked
with other ENS sufferers who have also benefited from craniosacral
therapy. Give it a shot.
Thanks for reading my additional thoughts and recommendations for non-surgical,
primarily natural treatments for ENS, sinusitis, allergic rhinitis, and
postnasal drip. These are not cures, as they do not alter the nasal anatomy to
reshape the nose back to normal from an overly empty nose, but they might offer
symptomatic relief. And they can be of great benefit. I appreciate your
interest in treating your nose and hope these ideas are helpful to you, or at
least food for thought from one patient to another.
Tips suggested by “Anthony”:
-Taking vitamin A/D helps the
mucosa produce mucus and sustain itself. It makes my
nose less dry.(atrophic rhinitis has been associated
with vitamin A deficiency) -The proteins in Milk and eggs also help the
mucosa. They will make your mucus thicker, and this may help your nose
feel less open.
-I've used Glucosamine chondrin and it had a
strange effect on my nose. It helped me a lot for about a week but then
the effects kind of diminished.
-The best diet for me
consists of fruits, vegetables, foods high in protein, and water. Things
that should be avoided are junk food, over eating, and not getting the proper
nutrition and vitamins. I have talked to a lot of ENS sufferers and they
mentioned that ever since they've had ENS, they started to eat more and more.
This is true for me too. Recently I've limited the amount of food I eat
and noticed such a difference in my entire body. all
the fat and cholesterol from junk food will damage your cardiovascular health,
and this will cause your tissues to get less oxygen and nutrients, and more
toxins. If you want your body to heal than keep it in good health by
exercising, and eating right, so that your body can regenerate.
-Applying Nouricel-MD topically to my turbinates
has benefited me a lot. I use a Que tip and I
message the gel onto my turbinates/septum/lateral
wall, and it stimulates the tissue to repair and grow. TNS Recovery
Complex is the only product containing a professional concentration of patented
NouriCel-MD. NouriCel-MD
contains an array of natural human growth factors, proteins, amino acids,
antioxidants, and soluble collagens, -I've
started doing a technique where I use gravity and muscles to force blood into
my turbinates. Basically I lay on my stomach on
my bed with the upper half of my body hanging off the bed and my nose facing
down toward the ground and the bed, and my turbinates
fill up with a decent amount of blood. but then while
in this position I try to push all the blood to the front of my nose, by doing
what you do to make your face red and filled up with blood. I apply pressure on
my eyes and my upper cheeks with my hands so that they don't fill up with too
much blood. And when I do this my turbinates fill up
with more blood than they ever have(since I've had
ENS). If I do this a one or 2 times a day, it makes a huge difference in how my
nose feels. If you try this make sure to never force to much pressure on
your eyes, ears or brain, because you don't want to over do it and make a blood
vessel burst. Also if you do this technique too many times a day it may
give you a headache. This exercise is really just meant to get some blood
in your turbinates, and prevent further atrophy.
This is the position you need to be in for this technique to be
effective.
-Sleeping is necessary for
your body to regenerate, so if you're using growth factors or healing from a
surgery, its very important that your letting your
body get enough sleep to function.
David Posted: Thu Jan
12, 2006 3:39
am: My Survival Tips:
Here is a list of things that I do that have worked for me. But as
always, "your mileage may vary"...
1. Saline Rinse 2-3 times
daily. Inverted in the tub works best. I haven't
noticed any difference with different recipes so I just use plain salt and tap
water. Lying flat on my back for about 5-10 minutes afterwards helps the excess
water drain out.
2. Sesame Oil 2-3 times daily.
I use a formula I got from Mayo during my visit there. It also contains
rose/geranium for a pleasant scent. I've found I need to apply it about 10
minutes after the rinse so it doesn't get washed out with the water.
3. Swimming Nose Plugs. I buy
them at sporting goods stores. I wear them when the pain is bad and on planes
or anywhere else with harsh air.
4. Cogenten/Benzatropine.
The doctors at Mayo suggested that a trycyclic
anti-depressant might help relieve the pain I had from ENS. I tried one and it
did. However, the tricyclics are "old
school" meds with lots of nasty side-effects. I had my psychiatrist help
me find a medicine that causes dry mouth, but is otherwise benign. He found Cogenten and it has given me about a 50% reduction in the
daily pain I live with. It seems that whatever causes dry mouth reduces my
pain.
These items have been the most helpful to me in the past 7 years I've
been dealing with ENS. I hope some of them help you too.
Mark Posted: Thu Jan
12, 2006 4:36
pm:
Ayr saline nasal gel -
applied inside the nostril - last several hours or more and helps with the
dryness feeling.
Saline Bottle - I have one in the car and at work - use it several times
throughout the day as needed to help with dryness
Beer/Alcohol - in moderation it helps or makes my nose feel fuller for
several days.
vaporizer or humidifier used at night helps me
sleep and helps with dryness.
Swimming - great exercise for ens
vicitims who otherwise can't run due to suffocation
Steam room - great break during the day if you have access
Information about Saline Irrigations:
Matt Posted: Wed Nov
15, 2006 11:46
pm: My Ratings of Nasal Washes etc:
Hello Friends and ENS sufferers. I am posting my ratings of various
nasal lubricants and what has been effective for ME.
Of course keep in mind that we are all different,
and what has or hasn't worked for me, may not be the case for you. Alas,
hopefully this will be of interest to those on the quest for your own best.
Good luck.
Regards,
Matt
Like many of you, I have tried a myriad of products. Here are my power
rankings: 10=panacea, as close as I remember breathing great
0=crapper, did little, or in
fact irritated.
Ocean spray: One of the first salines I had
ever tried (circa,1993). It seemed ok at the time
until nose became more dry over the years. Negatives:
Contains preservatives (benzalkonium chloride), and
inflated cost for saline due to the "ocean" label.
Overall rank: 2
ARY Gel, but as a metered spray: Not good. They added aloe, and for
whatever reasons, this product would cause my nose to stick shut almost
instantly as if it were glued--for me this means a crapper. I would give this a
0=crapper product, but it does make me sneeze, so it gets a few points. There
are many ingredients, including Benzalkonium
chloride. Perhaps I am allergic to their formula, hence the sneezes. I will say
however, with this reaction, I almost always PRODUCE mucus like crazy, so it
feels kind of good in that way for a short while. Rank 3 (only due to allergic
reaction)
Simply Saline GEL: I was very disappointed from this. I had really liked
Simply Salines aerosol saline, and thought that their
version of ARY gel would be great. It did relive dryness longer than saline
spray, but they added aloe, and it had a bad smell, and flavor when it would
PND down my throat. Overall rank: 4
AYR Gel (tube-based, not metered pump)
Good ol' reliable for traveling or going to a
smoky bar, etc. Unlike their gel spray, AYR in the tube
form doesn't cause my nose to glue shut like their pumped product. There is
aloe in it, but it doesn't seem as pungent as simply saline's or AYR's spray gel.
Also, when compared to AYR's spray-gel, the tube doesn't add Benzalkonium
Chloride. Of course, gels=bit messy since you have to use a q-tip or your
finger. Rank=6
Rhinaris Sesame oil
I was so excited when I first tried this out. It DID seem to keep
moisture levels constant for the longest time. However, I began to get annoyed
by this product. It will run right back out your nose down your chin. Watch
out...that sesame oil is GREASY and will look like you just spilled some nasty
McDonalds down your shirt. I also began to get annoyed by the oil's smell and
taste. BUT-it does last long. Rank= 6.5
Simply Saline sterilized saline (aerosol) I have really liked this
product for a few years. I feels so gentle and
nourishing to have the aerosol sprayed into nasal cavities. NO PRESERVATIVES (e.g benzalkonium chloride) very
nice. Negatives: cost $4-6 bucks/can. Also, as others report, I started to
notice that saline often dried my nose out in seconds after it was used. Rank=8
Grossans Breathe·EaseXl:
NO preservatives at all. Really good if you don't mind mixing
yourself. Negative: cost and availability. They say this is more cost
effective than purchasing a product like simply saline aerosol.
True, but this will add up over time, I found myself wasting the extra
from a mixture, and I couldn't find it locally. In sum, the
best "saline only" product. Rank=9
Xclear: Well folks, this is it for me, my
panacea. Xclear is purified saline, with Xylitol and grapeseed extract.
For me this has been the best.
It lasts longer than normal saline (not as long as sesame oil) almost as
long as gels--and much easier to spray. It has no smell, and is very soothing.
With the Xylitol, it will actually taste mildly sweet
if it drips. I use it 2x AM and PM. More if harsh
day/conditions. This is available at local health food shop and runs me
$12 for a 1.5 oz bottle.
I don't know if I overlooked it, but I don't recall anyone posting on Xclear or Xylitol. Google just Xylitol for yourself.
It has some very good qualities to it, and putting this in a nasal wash is just
dandy. RANK=10
Posted by TE, co-founder of the forum and ENS Association:
Never give in to ENS. Force your self to do all the activities your
heart wishes. Try and live the fullest life you can. ENS is just one more piece
of luggage you have to carry with you as you age.
Dr. Kern saw my CT in 1999, and told me that I couldn’t benefit from
surgery. Baffled and disappointed - I asked him - am I doomed? He answered that
not at all, providing I stick to the golden rule:
The golden rule for nasal mucosa's health:
Keeping good blood supply, keeping the nose moist as possible, and
exercising the residual neural activity:
Blood supply - maintaining low bad cholesterol, and sugars, exercising a
lot, and being kind to my heart. Never smoke. Have plenty of sex (the nose is a
secondary sex organ - and the highly vascular tissue responds very well to sex.
In fact it responses very well to any kind of enjoyable relaxing activity
because the nose is full of para-sympathetic nerve
system nerve endings and receptors. I also hang my self upside down at least
five minutes a day - to increase the blood flow to the head. This gives me
almost a half hour of close to a normal nasal sensation.
I Think that acupuncture to the nasal regions can do a lot of good,
though haven't tried it yet, but I have seen quite a few encouraging Chinese
studies about improving atrophic rhinitis with deep tissue - acupuncture. I
have also found that lying down and practicing relaxation with hot wet
compresses over my eyes and sinuses, helps a lot.
Keeping your sinuses warm at all times is paramount, especially if you live in
cold dry areas.
When ever you’re doing something passive -like watching TV - massage the
sides of your nose, press down on your turbinate stumps, and massage your
sinuses at the sides of your nose and forehead. Do a lot of physical activity
which you enjoy, to keep your blood supply network at top shape. If you don’t –
the first blood vessels to get clogged are the smaller ones, like the one’s
supplying the respiratory epithelium’s surface – the cilia, that will start to
degenerate.
Keeping your nose moist - although it's a drag - it's a must:
saline gels, humidifiers at night, drinking
lots of water, and hot beverages (not coffee or tea, but hot water, or healthy
soups. Fresh real chicken soup for example - is anti-inflammatory, and is very
good for increasing nasal humidity), salt+bi
carbonated soda irrigations - morning and night.
I give lectures sometimes to support myself and: If I'm very dry - this
will effect my speech, therefore - five minutes before a lecture begins I'll do
some fifty push-ups - this will keep my nose humid enough not to gag - for the
next hour. This again demonstrates the direct connection between blood
supply and humidity.
Nasal Neural Activity - I keep an aroma-therapeutic smelling oil bottle
in my pocket at all times. I sniff from it constantly.
Preserving your residual smelling capabilities is a must: when you smell
- more blood rushes to your nasal mucosa, you are focusing your brain on your
nose, and your mucosa secretes more moisture - need I say more. I believe that
with time - forcing yourself to smell (healthy scents... there are scents that
you should avoid - like ammonia, and alcohol - ask your doctor…) you increase
the amount of receptors in your nasal mucosa - and where ever nerve endings
grow into - along follow the blood vessels, and regrowth
of some functioning healthy nasal mucosa.
Another trick I use - is role a nice thin piece of cotton wool, and give it a nice hair thin tip, which I then use to stimulate
my nasal mucosa, in any nostril I chose, to evoke a sneezing response. Try and
make yourself sneeze a good few times a day. Works wonders.
All this above advice is a lifetime mission, and has to be maintained
constantly. The old rule applies here too - If you don’t use it - you lose it!
Dr. Houser's suggestions for nasal irrigation:
I often advise patients to obtain a Grossan
nasal irrigator - a tip to place into the nose; it can be purchased with a
special irrigation device from Hydromed (the Hydropulse; 1-800-560-9007). Saline is usually used
in the device. Packets of specially formulated salt can be purchased
directly from Hydromed, or you can mix it yourself
(may take some attempts to find the right mix): To make saline: boil 1 quart
water, add 1 tablespoon of salt: pickling, canning, or regular, and add 1
teaspoon of bicarbonate to reduce any chance of stinging. Let the solution
cool before use!
Additives can also be placed into the irrigation solution. You
would need your physician's approval and prescription for this:
Directions for Hydro Pulse Irrigation with Additives.
Add one
teaspoon of salt to Hydro Pulse
Basin.
Add warm
water to 500 cc and mix.
Set the
pressure at the nasal tip so that the stream is about one inch high
Irrigate the
nose 300 cc (about 150 cc each side) to clear
the mucus.
Stop and
gently clear the nose.
Add
medication to the remaining 200 cc.
Irrigate
about 100 cc each side till empty.
Sit quietly
for 10 minutes at the sink. No blowing.
Do not blow
the nose for 2 hours
Some physicians will add 40 mg of Gentamycin
to the 200 cc. Others use Tobramycin esp for patients with cystic
fibrosis. Some physicians will add 1/2 of a tube of Bactroban
to the 200cc (this is hard to dissolve, but it will - keep mixing!). Some
physicians are using antifungals, as some research
has shown a possible link for chronic rhinosinusitis
and fungi.
If the discharge is purulent, then the patient may be asked to perform
irrigation twice per day.
Children have used this regimen successfully.
Sitting quietly for 10 minutes keeps the solution in longer.
No nose blowing for two hours means less chance of blowing the medicine
into the ears via the eustachian tubes.